As I try not to be dark, I go over in my head all of the losses I have suffered in the past three years. I hope that I can help others as they go through this process.
The diagnosis came almost 2 years ago. The treatment began after several assessments(medical insurance and providers may vary and have an impact) in January 2018. August 2019 I am watching death come slowly and methodically. Ravaging the external body as it has certainly been doing internally. This is a cruel process for all parties concerned.
Physically; all that is being done is keeping the pain away. Timed disbursements of medications. We do return to our infancy, reliant on someone else to care for our basic needs. However, the progression in in the reverse.There is no conversation, I merely talk or don’t talk for awareness and comfort on both our parts. I reflect on The Curious Case Of Benjamin Button
I am sad, angry and depressed. I sometimes sit because I cannot move, paralyzed by the overwhelming sense of helplessness. I sometimes wander..aimlessly because I do not know what to do or how to feel. I don’t eat or I over eat. My concentration is indescribable.
I have to remain calm and controlled. I MUST be conscious and observant. I have to report changes I notice because this determines level of care. I am not a doctor, nurse or medical professional; yet I am charged with doing what these professionals DO NOT RECOMMEND FOR THEMSELVES “caring for a loved one”. Sometimes hearing the words that must come out of my mouth astound me. I take my mind/ myself away from the situation at hand, but as I return the emotions take over and I “lose it”.
TRUTH.. you really do NOT know what you are capable of until you are forced to face “difficulty”. Try to truly live in the NOW; Life is random and unpredictable, and YES life goes on.