If you have ever been put in a corner as a child, confined to a small place like an elevator, or even stuck in traffic you may understand a little bit of how a person with dementia feels. In a place you don’t want to be in, wanting nothing more than to get out, realizing there are others around you, but no one can give you the assistance you really need.
What of the caregiver; the one left to manage things on a daily basis and the one who sees things at their worse. Much like a person drowning; they will pull down the very one who is attempting to save them. How does that person feel? Outsiders have many answers, but truly no solutions. Now you have two isolated souls and all others can do is sit by and watch.
Then there are the others..the outsiders, for everyone NOT living within the realm of the four walls your experience is limited. I dare say in many delicate situations and conversations you will be made aware of this. Sometimes it will be painful. However, it APPEARS you have to most freedom of all concerned in this, but things aren’t always as they appear.
If it would do any good I’d say to the dementia patient try to understand people close to you are only trying to help you. They hear and they see. Your disease denies and distorts what is needed now, comprehension.
If it would do any good I’d say to the caregiver I’d say be patient. If you cannot be patient get out, if you cannot get out it goes back to be patient. YOU have to understand more than anyone else, this situation is NOT going to get better.
If it would do any good I’d say to the outsiders every single thing you do is appreciated and don’t go away because you are needed..DESPERATELY even when it doesn’t seem so.
To all involved; this is NO ONES fault, it is life and life is what it is.